DATA PROTECTION
The survey database will be hosted by the CHARITE Berlin Simulation and Training Centre. Data on questionnaire domains will be stored next to the participant’s personal code in Microsoft Excel format. This electronic Masterfile will be stored onto the password-protected hard disk of a personal computer. In addition, next to the participant’s personal code, we will enter the following personal data 1) age; 2) gender; 3) religion; 4 and 5) country and center/city of professional activity; 6) characteristics of the participant’s ICU (e.g. general, medical, surgical, etc.); 7) the participant’s professional focus (e.g. clinical, research, etc.); and 8 and 9) the participant’s professional grade (e.g. consultant, professor, etc.) and ICU experience (in years of work). There will be no collection/recording of participants’ names or electronic mail addresses. Therefore, the Masterfile will fulfill the criterion of ʺpseudonymization.ʺ
Results of the survey would be used to be evaluated within a new research project “Enhancing palliative care in ICU – EPIC” and will be published in a medical journal. This means that the data will be archived in electronic form for at least 10 years after the evaluation of this survey. We assure you that the questionnaire data will only be used for the above-mentioned purpose (detailed information about European ICU clinicians` awareness of palliative care and relevant, local end-of-life legislation). Your email addresses will not be recorded and the reminder function.
The system uses session cookies in the web browser to identify a logged in user with their current IP address. The cookie is created or updated upon login. The cookie becomes invalid as soon as the user logs out or is inactive for several minutes. In this case and at this time, the IP address will be discarded and will not be stored elsewhere.
The anonymous data from the survey will be passed from the BeST – Simulations- and Trainingszentrum of the Charité to Spyros D. Mentzelopoulos. he forwards the data to partners in Greece and England on to the following partners for joint evaluation:
Victoria Metaxa, M.D.
ICU Consultant
King’s College Hospital
NHS Foundation Trust London, UK
and
Spyros Mentzelopolous, M.D:
Professor in Intensive Care Medicine
National and Kapodistrian University of Athens (NKUA) MedicalSchool, Evaggelismos General Hospital, Athen, GR.
These partners will issue you with a certificate of acceptance at the end of the questionnaire, because they were responsible for the development of the questionnaire. The EU Commission has issued adequacy decisions in accordance with Article 45 GDPR for the United Kingdom, which recognizes them as safe third countries and ensures an adequate level of protection for the response data of this anonymous survey.
If you have any further questions, please contact the following project manager:
Central Contact Person: Spyros D Mentzelopoulos, MD, PhD
Telephone: +306975304909
Email: sdmentzelopoulos@yahoo.com
Central Contact Backup: Victoria Metaxa, MD, PhD
Email: victoria.metaxa@nhs.net
If there are any doubts about anonymity, other questions about data protection or your data subject rights (GDPR: You cannot exercise your right to erasure, access and rectification, as well as the right to object to data processing, to data portability, and the right to withdraw consent) under the General Data Protection Regulation, which are severely restricted in the case of anonymous data processing, please contact the following study management:
Spyros Mentzelopolous, M.D is the person responsible for processing the questionnaire data within the meaning of the EU General Data Protection Regulation. The study director makes every effort to take all reasonable steps to ensure that the data is still protected in accordance with the data protection standards of the European Union.
If the person responsible for collecting the questionnaire data cannot help you, you also have the right to lodge a complaint with a supervisory authorities,
EUROPEAN DATA PROTECTION SUPERVISOR:
Bruxelles, Rue Wiertz 60, B-1047 Brussels, Rue Montoyer 30, B-1000 Brussels
Telefon: +32 2 283 19 00
